Presentations

Academic presentations:

Clare, L. (2019, May). IDEAL study presentation at St Petersburg

Quinn, C. & Oliver, K. (2019, May). Reflections on Patient and Public Involvement from the 'Action on Living Well: Asking You' (ALWAYs) advisory network. Presentation at Alzheimer's Society conference, London, UK.

Henley, J. (2019, July). 'We're happy as we are'. What are the psychosocial barriers to seeking a dementia diagnosis? WISERD Annual Conference, Cardiff, UK.

Quinn, C. (2019, July). Influence of positive and negative dimensions of dementia caregiving on caregiver wellbeing and satisfaction with life: Findings from the IDEAL study. British Society of Gerontology, Liverpool, UK.

Rippon, I., & Victor, C. (2019, July). The impact of relationship quality on loneliness in carers of people with dementia: findings from the IDEAL programme. British Society of Gerontology, Liverpool, UK.

van del Huevel, E. & Victor, C. (2019, July). Living well with memory problems for black and South Asian communities in the UK. British Society of Gerontology, Liverpool, UK.

Litherland, R. (2019, July). Breaking the stereotypes of research. Keynote Presentation at the Faculty of the Psychology of Older People National Conference 'Beyond the stereotypes of ageing: Tales of the unexpected', Southport, UK.

Knapp, M. (2019, August). IDEAL study presentation at the Department of Social Work and Social Administration, Hong Kong University.

Clare, L. (2019, September). What works well in Dementia. Keynote at the Admiral Nurses Forum, Warwick, UK.

Quinn, C. (2019, October). Caregivers' beliefs about dementia: Findings from the IDEAL study. Alzheimer Europe conference. The Hague, Netherlands.

Rusiak, K. (2019, October). Managing the Paper Mountain: Systems and Processes for Tracing, Managing and Transforming High Volume Trial Data from Paper Sources. Poster session presented at the 5th International Clinical Trials Methodology Conference, Brighton

The Gerontological Society of America's Annual Scientific Meeting, Austin, Texas November 2019

Victor, C., & Fauth, E.B. (2019, November). Loneliness, isolation, and living alone among people with dementia and their carers: insights from the IDEAL study.

Victor, C. (2019, November). How lonely and isolated are older people with dementia and their carers: a dyadic analysis.

Rippon, I. (2019, November). Prevalence of loneliness and isolation among people with dementia and their carers.

Clare, L. (2019, November). Living alone with dementia: findings from the IDEAL cohort. 

Other presentations

Jones, I.R. (2019, March). IDEAL study presentation at the National Assembly for Wales Cross Party Group on Medical Research

Quinn, C. (2019, May). IDEAL study presentation at the West Yorkshire R&D Research Event

Academic presentations:

Rippon, I. & Victor, C.R. (2018, July). Which is the best way to measure loneliness in people with dementia? A comparison of single and multi-item measures. Presentation at the British Society of Gerontology Annual Conference, Manchester.

Hillman, A., Jones, I.R., Quinn, C., Nelis, S.M., & Clare, L. (2018, July). Risking vulnerability: the precariousness of living with and caring for those with dementia. Presentation at the British Society of Gerontology Annual Conference, Manchester.

Jones, I.R., Hillman, A., Quinn, C., Nelis, S.M., & Lamont, R.A. & Clare, L. (2018, July). Letting go of coherence: Qualitative interviews and the challenges of representing dementia. Presentation at the British Society of Gerontology Annual Conference, Manchester.

Clare. L. (2018, July). Cognitive rehabilitation for people living with dementia: a practical framework for enablement. Keynote Presentation at the British Association for Behavioural and Cognitive Psychotherapies 46th Annual Conference, Glasgow

Clare. L. (2018, July). A comprehensive model of factors associated with subjective perceptions of living well with dementia: findings from the IDEAL study. Presentation at The Alzheimer's Association International Conference, Chicago.

Clare. L. (2018, July). Living well with dementia: findings from the Improving the experience of Dementia and Enhancing Active Life (IDEAL) study. Presentation at the Alzheimer’s Disease International (ADI) Conference, Chicago.

Morris, R. (2018, July). Measuring subjective accounts of symptoms and diagnosis in people with dementia: The development of the RADIX. Presentation at the International Neuropsychological
Society 2018 Mid-Year Meeting, Prague.

Academic presentations:

Clare, L., Martyr, A., Nelis. S.M., Quinn, C., Lamont, R., Henderson. C., Jones. I.R., & Victor, C. (2017, May). Living well with dementia: a systematic review. Paper presented at the British Psychological Society Annual Conference, Brighton.

Quinn, C. (2017, July) Dementia narratives: how people understand and adjust to a diagnosis of dementia. Symposium at the British Society of Gerontology Conference 2017, Swansea.

Hillman, A., Jones, I.R., Quinn, C., Nelis, S. M., & Clare, L. (2017, July). Dualities of dementia accounts: biographical reinforcement and narrative economies. Presentation at the British Society of Gerontology Conference 2017, Swansea.

Clare, L., Quinn, C., Woods, R.T., & Jones. I.R. (2017, May). Understanding and adjusting to dementia: implications for how we talk to people about the condition. Presentation at the British Society of Gerontology Conference 2017, Swansea.

Oliver, K. (2017). Dementia Narratives – how people understand and adjust to a diagnosis of dementia – “Walk the Walk, Talk the Talk”. Presentation at the British Society of Gerontology Conference 2017, Swansea.

Scott, H. (2017) Social class, ageing, and forms of identity among women living with dementia. Presentation at the British Society of Gerontology Conference 2017, Swansea.

Clarke, R., Chen, H.L., & Rusted, J. (2017, July). Exploring psychological wellbeing in working dementia carers. Poster presented at the Alzheimer’s Association International Conference, London.

Martyr, A. Nelis, S.M., Quinn, C., Wu, Y.-T., Lamont, R., Henderson, C., Clarke, R., Hindle, J., Jones, I.R., Morris, R.G., Rusted, J.M., Thom, J.M., Victor, C.R. & Clare, L., (2017, July). Living well with dementia: a systematic review and meta-analysis. Poster presentation at the Alzheimer's Association International Conference, London.

Clare, L. (2017, July). Improving the experience of Dementia and Enhancing Active Life: early findings from the IDEAL cohort. Symposium at the International Association of Gerontology and Geriatrics (IAGG) World Congress, San Franscisco.

Clare, L., Nelis, S., Wu, Y., Martyr, A., Knapp, M., Henderson, C., Lamont, R., & Matthews, F. (2017, July). Improving the experience of Dementia and Enhancing Active Life (the IDEAL Study): cohort profile. Presentation at the International Association of Gerontology and Geriatrics (IAGG) World Congress, San Franscisco.

Hillman, A., Jones, I.R., Quinn, C., & Clare, L. (2017, July). Letting go of coherence: the challenges of representing dementia. Presentation at the International Association of Gerontology and Geriatrics (IAGG) World Congress, San Franscisco.

Jones, I.R., Hillman, A., Quinn, C., & Clare, L. (2017, July). Dualities of dementia accounts: biographical reconstruction and narrative economies. Presentation at the International Association of Gerontology and Geriatrics (IAGG) World Congress, San Franscisco.

Martyr, A., Wu, Y., Morris, R., Hindle, J., Rusted, J., Thom, J., Clarke, R., & Clare, L. (2017, July). Factors associated with quality of life in dementia: a correlational meta-analysis. Presentation at the International Association of Gerontology and Geriatrics (IAGG) World Congress, San Franscisco.

Quinn, C., Morris, R.G., & Clare, L. (2017, Oct). Adjustment and representations in dementia. Poster presentation at the Alzheimer's Europe Conference, Berlin.

Quinn, C. (2017, Oct). Improving the Experience of Dementia and Enhancing Active Life: Living well with dementia: the IDEAL study. Presentation at Interdem Conference, Berlin.

Other presentations:

Clare, L., Martyr, A., Nelis. S.M., Quinn, C., Lamont, R., Henderson. C., Jones. I.R., & Victor, C. (2017, May). Living well with dementia: a systematic review. Presentation at the Devon Partnership Trust research conference, Exeter.

Academic presentations:

IDEAL Project Team with Members of ALWAYS (2016, Nov) UK Dementia Congress- workshop titled 'What does living well with dementia mean? Learning from people with dementia and carers through the IDEAL study' (PDF, 2.1MB)

Hillman, A. & Jones, I.R. (2016, Sept). Dualities of dementia accounts: Biographical reconstruction and narrative economies. Presentation at the British Sociological Association’s Medical Sociology Group's Annual Conference 7^th-9^th September 2016, Aston University, Birmingham.

Martyr, A. & Clare, L. (2016, July). Awareness of functional ability in people with early-stage dementia. Poster presentation at the International Neuropsychological Society mid-year conference, London.

Quinn, C. (2016, May). Living well with dementia. (PDF, 4.1MB) Presentation at the ‌Welsh Psychiatric Society Advanced Psychological Therapies, Swansea.‌‌‌‌‌

Clare, L., Quinn, C., Jones, I.R., & Woods, R.T. (2016, April). 'I don’t think of it as an illness': illness representations in mild to moderate dementia. Presentation at the British Psychological Society Annual conference, Nottingham.

Clare, L., Nelis, S.M., Kudlicka, A. O'Dwyer, S.T. (2016, Mar). The Centre for Research in Ageing and Cognitive Health‌. (PDF, 697kb). Poster presentation at the University of Exeter South Cloisters VIP Opening Event, Exeter.‌‌

Hillman, A. (2016, Feb). Letting go of coherence: the challenges of representing dementia. Presentation at the British Sociological Association (BSA) Ageing, Body and Society Study Group 7^thAnnual Conference entitled: 'Ageing and Culture' at the University of Manchester, UK

Other presentations:

Nelis, S.M. (2016, Mar) Involving people with dementia and carers in the 'Improving the experience of Dementia and Enhancing Active Life' (IDEAL) study. Presentation at the Patient and Public Involvement and Dementia Workshop. The University of Exeter Medical School, Exeter, UK.

Academic presentations: 

The Gerontological Society of America's 68th Annual Scientific Meeting, Orlando, Florida November 2015

Jones, I.R. (2015, Nov.). Social Class, Dementia, and the Social Imaginary of the Fourth Age. The Gerontological Society of America's 68th Annual Scientific Meeting, Orlando, Florida.

Victor, C. & Clare, L. (2015). Symposium: Living well with dementia: preliminary insights from the IDEAL study.

Clare, L., Quinn, C., Woods, R.T., & Jones, I.R. Understanding and adjusting to dementia: implications for how we talk to people about the condition.

Morris, R., Martyr, A., Nelis, S.M,, Markova, I.S., Roth, I., Woods, R.T., & Clare, L. Being less aware of functional decline may preserve emotional well-being in people with dementia.

Victor, C., Pikhartova, J., & Woodbridge, R. Is loneliness a cause or consequence of dementia?

Jones, I.R., Victor, C. & Clare, L. on behalf of the IDEAL study team. Capitals, assets and resources: a framework for understanding the lived experience of dementia.

Clare, L. (2015, Jan.). Living well with dementia: the IDEAL study. Poster presentation at the GW4 Aging and Dementia (GW4AD) Consortium Conference, Bristol.

Clare, L. (2015, Feb.). Awareness, self-concept and the experience of dementia: foundations of a psychologically-informed approach to care and support. Presentation at the NEURODEM Cymru North Wales Conference, Bangor University.

Hindle, J.V. (2015, Feb.). Research in non-pharmacological interventions in Parkinson’s disease. Presentation at the NEURODEM Cymru North Wales Conference, Bangor University.

Other presentations:

Watkins, C. (2015, Jan.). Improving the experience of dementia and enhancing active life: the IDEAL study.Presentation at the Involving Older Adults in Research Awareness Workshop, The Wales Dementias and Neurodegenerative Diseases Registered Research Group, Wrexham.

Victor, C. (2015, Mar.). Living well with dementia: the IDEAL study. Presentation at the ‘New Directions in Dementia Research’ Meeting at the NIHR CRN Thames Valley and South Midlands, Buckinghamshire.

Martyr, A. (2015, May). Centre for Research in Ageing and Cognitive Health‌. Presentation at the Academic centres for psychosocial research in dementia, The Institute of Mental Health, University of Nottingham.

Clare, L. (2015, Sept.). Promoting health and well-being for older people and people with dementia. Presentation at the 50th Anniversary symposium, School of Applied Psychology, University College Cork, Ireland.

Quinn, C. (2015, Oct). The IDEAL Project. Research Showcase, Cornwall Partnership NHS Foundation Trust. Eden Project.

Academic presentations:

Clare, L. (2014, Feb.). Awareness, self-concept and the experience of dementia: foundations of a psychologically-minded approach to care and support. Birrell Lecture, School of Psychology, Edinburgh University. Edinburgh.

Clare, L. (2014, Feb.). Awareness, self-concept and the experience of dementia: foundations of a psychologically-minded approach to care and support. Neuroimaging Skills for Dementia. University College Dublin, Dublin.

Jones, I.R. (2014, Feb.). Improving the experience of dementia and enhancing active life: living well with dementia: the IDEAL study. Presentation at the Older People & Ageing Research & Development Network (OPAN Cymru) seminar, Swansea.

Clare, L. (2014, May). Improving the experience of dementia and enhancing active life: living well with dementia. Presentation at the NISCHR CRC North Wales Collaborators Meeting, Bangor.

Clare, L., & Nelis, S.M. (2014, June). Improving the experience of dementia and enhancing active life: living well with dementia. Presentation at the Faculty for the Psychology of Older People (FPOP) of the British Psychological Society Conference, Shrewsbury.

Martyr, A. & Clare, L. (2014, July). Awareness of functional ability in people with dementia: diagnostic accuracy and clinical implications. Poster presentation at the Alzheimer's Association International Conference, Copenhagen, Denmark.

Other presentaions:

Hindle, J.V. (2014, Mar.). An Old Dog Learning New Tricks. Presentation at the Welsh branch of the British Geriatrics Society, Llandrindod Wells.

Victor, C. (2014, Mar.). Dementia and Ageing. Presentation at the Brain Awareness Week, Brunel University, London.

Hindle, J.V. (2014, Mar.). An Old Dog Learning New Tricks. Presentation at the NISCHR Peer Review Meeting, Llandrindod Wells.

Rusted. J. (2014, June). Improving the experience of dementia and enhancing active life: living well with dementia. Poster at Sussex Partnership Trust Annual Research Day, Sussex University.

Jones, I.R. (2014, Aug.). Living with Dementia: Social and psychological factors (IDEAL). Presentation at the National Eisteddfod of Wales, Carmarthenshire.

Toms, G. & Quinn, C. (Nov. 2014). Improving the experience of dementia and enhancing active life: the IDEAL study. Neuroskill end of study meeting, Bangor University.